Down Syndrome Prenatal Testing Pamphlet Now Available
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The pamphlet also dispels the notion that new non-invasive 10-week blood tests for Down syndrome are diagnostic or 100 percent accurate. In fact, new blood tests on the market have shown high levels of accuracy only within a defined high-risk population (e.g. pregnant women over the age of 38). These tests are not recommended for women with low-risk pregnancies because their accuracy has not yet been demonstrated.
The Global Down Syndrome Foundation and the National Down Syndrome Congress will continue to measure the impact of the pamphlet through follow-up surveys and to monitor advances in prenatal testing, and the pamphlet will be updated as appropriate. The pamphlet format allows for easy updates and distribution.
Over the next several months, both organizations will be providing additional links and resources associated with a prenatal diagnosis of Down syndrome. For free downloads of the pamphlet or to learn more, visit downsyndrometest.org.
The Global Down Syndrome Foundation is a public nonprofit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the U.S. committed to research and medical care for people with the condition.
Founded in 1973, the National Down Syndrome Congress is the oldest national organization for people with Down syndrome, their families, and the professionals who work with them. A 501(c)(3) non-profit advocacy organization, the NDSC provides free technical support and information about issues related to Down syndrome throughout the lifespan, as well as on matters of public policy relating to disability rights.